We call him Bubby!

We are starting this blog in hopes that everyone who knows and loves Jonathan (Bubby) can better understand his day to day living and help us support him and show him the love he so much needs.
We notice a few years ago that Bubby was a little different from the other kids. We were told by the doctor's he may have Aspergers but kinda believed it was him just being a boy. We moved to Junction City Kansas in December of 08. When he saw his doctor the first time there for another issue he asked if we would have him tested for Aspergers. We agreed this was another doctor telling us the same thing again. The sent him to Childrens Hospital in Kansas City and they did a lot of testing and after months of wondering we were told yes he did have Aspergers. It is a form of Autism. I remember leaving the doctor's for my two hour drive back to Junction City when it hit me, my son has ASPERGERS! What was this thing they called aspergers and why is it in my life, not my son, the aspergers it self.I was confused, scared and so unsure of how this all would tie into our life. I started questioning my self as to where I went wrong with the care I had given my son the first years of his life. Did I get enough treatment when I was pregnant, did I do this to him! I believe I cried the whole drive home, I only wanted what was best for my son. Was I being unfair to be feeling sorry for myself. Then as I got closer to home, I thought God would only give me what I could handle, I was a military wife my husband left many times over to tours in Korea, and Iraq, I could handle anything, right? And I had to tell my self that I was given this wonderful boy and it was up to me to get him the help and give him the love he needed. I told my self I was aloud to feel sorry for that car ride home but it was all about him and my family being everything and anything we wanted to be. I started right away with getting him into doctors and setting him up with everything he needed. Everything seemed to be falling into place but then when all the appointments started coming at once, I kinda spinned out of control. We had to see the doctor's in Kansas City which took me a little over two hour to drive one way, for an two hour appointment to turn around and drive back, each week. On top of the aspergers Bubby was seeing an Endocrinologist for SGA, they have him on growth hormone replacement therapy shots six days a week. Who we also had to see in Kansas City. So it just seemed that every time we turned around we were going to the doctors in Kansas City. Many nights we would stay the night before in a hotel because the appointments were so early in the morning. It was OK in the summer but once school started they did not want him missing a full day of school, we had no choice, what should we do. When we went back to his doctor at the base, I told him my concerns with how much time he was missing of school. his doctor, Dr Meng said maybe we should look into getting a reassignment to somewhere that could handle what he needed. I went home and talked to my husband about it that night and he said OK, lets do it so we started out paper work for some where that we could get care closer to home. We were approved for an compassionate assignment to Ft. Carson, Colorado. With in two weeks we were packed and on our way to Colorado. We got here on The 1ST of October. We got into his new doctor and we are very happy to have him. A great doctor that I know God sent to us for our son. Bubby has a twin sister Hannah, who is such a wonderful girl. She has been a true trooper and even with all the attention it seems Bubby gets she is still an awesome daughter. I was double blessed with her. We got them into school and they are in the same class again this year. We had stopped that but with the move and Bubby not being able to adjust to change as well as others we thought it would be better to keep them together for the time being. Social skills is not something that comes easy for him, as aspergers is an social issue. Hannah is the youngest of the two but is so much so much older then him is socially. Bubby started to have some tics a while ago but was said to be part of the aspergers. So like before I just let it go. They have gotten more intense over the past two months, and more nosies have been more pronounce. I have asked the doctor about them but they were not really bad to deal with, but now out of no where there are really affecting his everyday life. Tommy, my husband and I felt it was worth going back to the doctors about it. After him doing a study of Bubby and reviewing his records the tics are now considered tourettes! Yikes what else can this poor child be labeled with. He is now on medicine for the tics and it makes him very sleepy so I'm not thrilled with it and to be honest it doesn't seem to be working but then again I want instant results, we go back to the doctors on the 15TH and will know by then if the medicine is working. Everyday it seems something just makes me realize how special Bubby is and how blessed I am. I have become more aware of others and the pain so many people go through. I have learned that you have to be patient and treat them the same as you do others. Believe in them and just help guide them in the right direction. I am just wanting everyone to know he is the same as any other child but just with a bit of a twist. He is wired different then you and I are so things don't always go as planned. I can never plan to far ahead because some days are much better then others. But I know this is something we didn't plan for but we have to face and we will take each day as we get it. I will use this as a way to put my feelings down and hope that someone gets something out of it. My children are amazing and I am so thankful to have them in my life. Jonathan and Hannah thank you for being my children, Daddy and Mommy loves you both so much.